I am so happy to have lived for another year!
I am feeling pretty excited and hopeful…
Thank you so much for reading!
Feeling lots of birthday love today!
Chronic migraines are an ever-changing struggle. I have good days in a row, and I start to feel almost “normal.” And then I have bad day after bad day that has me wondering, “will I EVER feel that normalcy again?”
Up and down on the pain rollercoaster.
This week, I had an appointment with my neurologist to discuss treatment options.
I’ve been seeing the same doc for years… and he just seems kinda… lost. I’m a hard case, because most of the things we tried have actually made me worse. And none have really helped.
I had to ask for a referral. I am LONG overdue for seeing a new doctor. I need a MIGRAINE SPECIALIST, not just a neurologist.
I know my neuro wants to help, but at this point, I need another opinion.
SO *fingers crossed*… I’m waiting for insurance approval, and then I can set up an appointment.
Such is the life.
I had a scary migraine attack all day yesterday. I woke up today feeling less pain, which is good. But I had that “migraine hangover” feeling, and I was emotionally drained.
How, after 17 years of having these attacks …(omg, 17 years, has it been that LONG?!)…
how do we still know NOTHING?
I don’t know how to prevent these kinds of scary attacks.
And I don’t know why they happen.
It’s a very helpless feeling, to be in so much pain for whatever unknown reason, and to know that going to the Emergency Room probably won’t even help. The last few times I went, the medications actually made things WORSE by adding side effects to the situation.
So I’m left with this feeling today, that there is 1 thing I know: We Know Nothing.
I have hope that this will change. I have hope that I will eventually figure some things out. But for now, I just take life 1 day at a time.
Having access to Youtube is like having access to free classes. How is it possible that these amazing videos, with a wealth of knowledge, are FREE?! It is truly awesome.
I came across a video that is SO GOOD that, once again, I feel compelled to share it with everyone!
It is a longer one (over an hour) but WELL WORTH watching the whole thing.
*It’s okay if you are like me, and you can’t finish it all in one sitting!
Here is the video description on Youtube:
“Over the past two decades there has been a revolution in our knowledge of how pain is made by the brain, but very little of this information has reached pain sufferers. Much of the complex pain science can be reduced to a simple formula, ‘we will have pain when our brain has more credible evidence of danger to our body than credible evidence of safety to our body.'”
Thanks for reading my post today… and feel free to leave a comment!